• girlfreddy@lemmy.ca
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    7 months ago

    The HeLa line had its own male-dominated issues, ie: denying her family a right to any money from the use of her genetics … which, once rectified, led to a signing away of any rights for people who have an interest in helping advance scientific and medical knowledge and/or treatments.

    I know this because I was asked to become part of a study, but after reading the contract that clearly stated I (and my family/descendants) would be shut out of any and all financial compensation, I declined.

    While I agree with this if/when a government agency or university developes treatments or cures, I do not agree with it when the info is given freely to for-profit big pharma for them to make trillions from.