I have no energy to go into details and it won’t result in anything, so I won’t. But I’ve been living with chronic pain for ages and it got significantly worse to a point where it inhibits my ability to sleep and drives me mad while I try to work.
Doctors are able to observe and do observe the cause, but refuse to help me, because I lost my medical records when I was either homeless (which I was multiple times) or when I moved countries (also multiple times), which I genuinely am sure aren’t even needed and they use as an excuse.
I have last chance appointment next week. If I don’t get help, I plan to move out of this country asap, because I have to mandatorily pay hundreds of euros each month of healthcare, which I don’t receive, with doctors being extremely disrespectful, with some indirectly, but very clearly, telling me to leave this country. I’m so tired.
I can’t take painkillers because at this point they screw my stomach, making my situation even worse than the pain I have.
Feel free to share your awful stories of bad interactions with medical staff. Reading such is how I cope.
Oh my, that’s genuinely awful. My mom had (and still has) chronic pain and so does my best friend. I had to give massages at night after they couldn’t bear the pain and they wouldn’t ask me because they didn’t wanna burden me or something like that. Since they were always in pain, they didn’t wanna feel needy!! So they’d wait until it was at its worst!
Really hope there’s something out there that can help you somewhat immediately. My best friend did physio (still does… consistently for 4ish years now) and the prescribed exercises & stretches really helped her out.
Medical staff won’t give you what you need when you seem too ‘needy’, it’s awful, it has a long precedent, and it’ll keep happening for the foreseeable future until contemporary medicine changes their modus operandi from zero-sum marginal-numbered positions to allowing anyone dedicated to become a doctor/medical professional.
Yea, people get confused why people in chronic pain may appear fine. When you’re always in pain, you don’t have to “inconvinience” people by expressing it. Some of us may carry burden of getting attacked from birth by people allegedly there to take care of you (family) for having the pain and daring to ever express it.
I am in an endless limbo where doctors are angry that I’m not already diagnosed… So they don’t do diagnostics. I tried all methods of communicating to no avail. I always blame myself first, because I’m the only variable I’ve control over, but I sincerely tried everything I can and nothing works. I’ve no diagnose, so I must be lying, even though the doctors themselves observe the symptoms and record them. I had multiple doctors suggest I’m taking drugs to forge my blood tests - blood tests which I didn’t even know were coming, me being a person who doesn’t smoke, drink or else, and cannot even take painkillers anymore because they make my tummy ache way too much and may fuck up my intestines, so I’d rather just have the pain I have than a new pain and other symptoms with a possibility of kidney and/or liver failure.
I don’t even want to go to the doctors. I just want to get diagnosed, get a treatment and never come back if that’d be possible. I’m so tired of medical staff dragging out the process by refusing to work AND not telling me they won’t treat me (I had one doctor tell me he doesn’t want to be my doctor and at least I appreciate the honesty so I can move on from someone who is uncooperative to someone who may be). I would understand if I had no symptoms and no issues, but they DO measure my issues, note my case as particularly bad and then do nothing.
I’m super poor, but I did a full DNA test and then compiled all the faulty markers into a list myself. Doctors don’t care, because it wasn’t scheduled by their laboratory. And there’s plenty of VERY relevant things in there. I have two visits next week and a dermatologist all the way in August. If next week shows no hope, I’m going to leave this country. Fuck this. I’m so tired. I cannot even afford private healthcare here. My experience with private healthcare isn’t much better, because they give me ineffective treatments, but at least they do something, so eventually maybe I’d reach an effective treatment. Ones paid by my public insurance keep drawing out the entire thing and then instead of going into diagnosing root cause or treating it, they say shit implying I must be lying about my medical history, because they cannot believe no one diagnosed and/or helped me in the many years I’ve been alive WHILE THEY THEMSELVES DO THE EXACT SAME THING.
Sorry for a long rant. I’m just so tired of this trap and I cannot even rest because my “free” time is ridden with pain and inability to sleep due to it. I tried medication for sleep but all it makes me is feeling more tired while continously waking up from pain, if I even manage to fall asleep.